I want to invite you all to listen to this heart wrenching story of Amanda Moral, a 28 year old survivor of Shaken Baby Syndrome. She is in desperate need of a procedure that will save her life. Please share this interview and the GoFundMe link with everyone you know and let’s be His church and make this miracle happen. Thank you for your prayers and financial support.
28-year-old Shaken Baby Syndrome Survivor Seeks to Raise Funds for Life-Saving Adult Stem Cell Treatment and Help Other Children
FORT MILL, SC, September 27 – A life–saving adult stem cell treatment currently not approved by the FDA is saving countless lives. Amanda Moral wants it to save hers.
Amanda, 28, began experiencing epileptic bouts at four years of age after being severely shaken as an infant. When she slipped into a coma during her first grand-mal seizure, doctors put her in a medically induced coma to give her brain a rest from the seizures—seizures often occurring only a minute apart from each other.
Abusive Head Trauma (AHT), also known as “Shaken Baby Syndrome” (SBS), can be caused by direct blows to the head, dropping or throwing a child, or shaking a child. Head trauma is the leading cause of death in child abuse cases in the United States. For Amanda, it’s meant spending a majority of her life in and out of hospitals. Undeterred by the severity of her seizures, she has succeeded, through rigorous physical and occupational therapy, to learn again how to walk, feed herself, and comb her hair. A champion of courage, her current GPA is 3.8 as she pursues her associate’s degree in science and math at Central Piedmont Community College’s Levine Campus in Matthews, North Carolina.
Doctors have diagnosed Amanda’s seizures as both convulsive and non-convulsive status epilepticus—a condition causing seizures to last more than 30 minutes. She also suffers from focal, frontal, and medial temporal seizures. Some of these seizures alter emotions or change the way things look, smell, feel, taste, and sound. Even when medications are kept at therapeutic high levels, Amanda has continued to have break-through seizures, and her body is breaking down due to years of stress on her major organs. What happens to children with SBS is that they die in infancy or shortly before age 12. This is what is happening to Amanda now as she experiences seizures about 20-25 days each month.
There is a treatment that will cure Amanda. Following a successful fundraising campaign, Amanda will be treated by U.S. and international physicians and staff with extensive training and experience in adult stem cell therapy. Stem cells from her own body will be used to put an end to the seizures and repair damage done to her brain and heart. Amanda may then be able to live a normal, healthy life and fulfill her goals and dreams of helping others, especially children suffering from SBS.
Total cost of treatment and associated expenses is $82,000. Because the medical treatment is not FDA-approved, her insurance will not cover the cost of this life-saving procedure, leaving her and her family to find a way to cover the cost of treatment out-of-pocket. Over $18,000 has been raised.
If you would like to donate to help Amanda receive this life-saving treatment or to learn more about her story, please visit her GoFundMe Campaign, to contribute any amount.
For media inquiries, please contact Amanda’s mother, Virginia Moral, at iamHis09@gmail.com.
Address: 335 Sugar Creek Crossing Fort Mill, SC 29715